The relationship between caregiver burden and psychological resilience among parents of children with disabilities

Authors : Gözde Çalgıcı Duran, Havva Akpınar

Pages : 564-571

Doi:10.32322/jhsm.1662323

View : 89 | Download : 102

Publication Date : 2025-07-30

Article Type : Research Paper

Abstract :Aims: This study aims to examine the relationship between caregiver burden and psychological resilience among parents of children with disabilities. Methods: This research is a cross-sectional and relational research. The study sample comprised 156 parents of children with disabilities. Data were collected using the Introductory Information Form, the Zarit burden interview, and the adult resilience measure. Results: It was determined that the parents’ Zarit Burden Interview total mean score was 44.07±17.29, the Adult Resilience Measure total mean score was 85.22±11.61, the results showed that parents experienced moderate-severe levels of caregiver burden while demonstrating good levels of psychological resilience. A weak and negative but statistically significant correlation was observed between scores on the Zarit burden interview and the adult resilience measure (r=-.293, p=0.000, p<0.05). Caregiver burden was found to be higher among parents who had another child, especially another child with disabilities, who experienced psychological distress, who had a long caregiving history, and who had a child with intellectual disabilities or advanced-severe care needs. Conclusion: It is recommended that psychoeducation and psychosocial support interventions should be provided to parents with disabled children to reduce their caregiving burden and health professionals such as nurses, psychiatric nurses and psychologists should be employed in special education and rehabilitation centers; and similar studies should be conducted with larger groups.
Keywords : Engelli çocuk, ebeveyn, bakım verme yükü, psikolojik sağlamlık

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